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Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.

Shenuka SinghKeymanthri Moodley
Published in: BMC medical ethics (2021)
The study findings indicated inconsistencies in stakeholder understanding of ethico-legal considerations related to biobanking in South Africa. A need for ongoing ethics capacity development among stakeholders was identified. Improving understanding of the ethics of biobanking could be facilitated by acknowledging the disconnect created by biosamples in the relationship between biobank researchers and donors.
Keyphrases
  • south africa
  • public health
  • hiv positive
  • big data
  • machine learning
  • artificial intelligence
  • kidney transplantation
  • drug induced
  • human immunodeficiency virus