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Supporting families of children with an undiagnosed genetic condition: Using co-design to ensure the right person is in the right post doing the right job.

Kate OultonFaith GibsonAnna WilliamsSophie GeogheganSusie AldissJo Wray
Published in: Child: care, health and development (2021)
Highlighted in this paper are the practical aspects of engaging and involving all relevant stakeholders in the process of co-designing a new post and subsequent staff recruitment. The flexibility employed in the setting and methods of data collection were instrumental in ensuring that the views of a diverse range of participants were ascertained. A major consideration is the resources required to undertake co-design, in terms of time and finances. We believe that the resources required for the co-design are offset by the advantages of having the right person in the right post, doing the right job.
Keyphrases
  • young adults
  • electronic health record
  • machine learning
  • big data
  • copy number