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Genetic counseling and testing practices for late-onset neurodegenerative disease: a systematic review.

Ashley CrookChris JacobsToby R O Newton-JohnRosie O'SheaAlison McEwen
Published in: Journal of neurology (2021)
Contemporary genetic counseling and testing practices for LONDs are varied and informed by regional differences and the presence of different health providers. A flexible, multidisciplinary, client- and family-centered care continues to emerge. As genetic testing becomes a routine part of care for patients (and their relatives), health providers must balance their limited time and resources with ensuring clients are safely and effectively counseled, and all four genetic counseling goals are addressed. Areas of further research include diagnostic and reproductive genetic counseling/testing practices, evaluations of novel approaches to care, and the role and use of different health providers in practice.
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