Patient engagement in fertility research: bench research, ethics, and social justice.
Perry R FlemingMakayla M SwygertCoen HasenkampJessica SterlingGinny CarteeRebecca Russ-SellersMelanie CozadRenee J ChosedWilliam E RoudebushAnn Blair KennedyPublished in: Research involvement and engagement (2021)
Bench science researchers may need additional PPI training prior to engaging with patient groups. PPI in this project was successful in large part due to this training, where the director emphasized the importance of gaining trust with the patients. The researchers applied what they learned and several examples of how to develop trust with patients are discussed. If trust is established, PPI in an ethically charged, basic science research study can be both valuable and successful.