Validation of the Parent-Proxy Version of the Pediatric Charcot-Marie-Tooth Disease Quality of Life Instrument for children aged 0-7 years.
Tong Tong WuRichard S FinkelCarly E SiskindShawna M E FeelyJoshua BurnsMary M ReillyFrancesco MuntoniEvelin MilevO T Timothy EstilowMichael E ShySindhu Ramchandrennull nullPublished in: Journal of the peripheral nervous system : JPNS (2023)
The parent-proxy version of the pCMT-QOL outcome measure, known as the pCMT-QOL (0-7 years parent-proxy) is a valid and sensitive proxy measure of health-related QOL for children aged 0-7 years with CMT. This article is protected by copyright. All rights reserved.