Health-Related Quality of Life Outcome Measures in Individuals With Hereditary Hemorrhagic Telangiectasia: A Scoping Review.

Anna J GongTushar GargAdham KhalilPrateek C GowdaStephen C MathaiNicholas R RowanChristian A MerloClifford R Weiss

Published in: American journal of rhinology & allergy (2023)

Comparison of results across studies remains challenging given the heterogeneity in outcomes measures. Further development of HHT-specific patient-reported outcomes instruments that capture the global illness experience of HHT is needed.

Keyphrases

patient reported outcomes
single cell
type diabetes
adipose tissue
clinical evaluation