Life with pediatric home ventilation: Expectations versus experience.
Carrie M HendersonJessica C RaisanenKelly J ShipmanNicholas A JabreBenjamin S WilfondRenee D BossPublished in: Pediatric pulmonology (2021)
The priorities that families consider during decisions about pediatric home ventilation may not be aligned with the actual home experience of this technology. Given that the success of home ventilation largely rests with the family's care, family expectations for home life adaptations must be augmented, as should postdischarge supports for families with complex home care experiences.