Resource utilization and multidisciplinary care needs for patients with Ehlers-Danlos syndrome.

Jordan T JonesWilliam R BlackWendy CoganElisabeth Callen

Published in: Molecular genetics & genomic medicine (2022)

Understanding healthcare utilization and needs of those with EDS can provide the foundation for improved care for those with EDS through a coordinated multidisciplinary care model.

Keyphrases

healthcare
quality improvement
palliative care
affordable care act
pain management
social media