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Health data collection methods and procedures across EU member states: findings from the InfAct Joint Action on health information.

Brigid UnimEugenio MatteiFlavia CarleHanna TolonenEnrique Bernal-DelgadoPeter AchterbergMetka ZaletelStefanie SeelingRomana HaneefAnne-Charlotte LorcyHerman Van OyenLuigi Palmieri
Published in: Archives of public health = Archives belges de sante publique (2022)
Data collection and exchange procedures differ across EU MS and research data are not always available, accessible, comparable or reusable for further research and evidence-based policy making. There is a need for an EU-level health information infrastructure and governance to promote and facilitate sharing and dissemination of standardized and comparable health data, following FAIR Data principles, across the EU.
Keyphrases
  • health information
  • social media
  • electronic health record
  • healthcare
  • public health
  • big data
  • mental health
  • multiple sclerosis
  • machine learning