Use of home parenteral nutrition in severely neurologically impaired children.
Francisco MourãoSophie BertaudJoe BrierleyRenee McCullochJutta KöglmeierSusan M HillPublished in: Archives of disease in childhood (2021)
HPN can play a role in relieving gastrointestinal signs/symptoms in children with severe NI and IF. HPN can be conceptualised as part of good palliative care if judged to be in the child's best interests. However, given its risks and that HPN has the potential to become inappropriately life-sustaining, a thorough ethics review and evaluation should be performed before it is initiated, withheld or withdrawn in children with severe NI.