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Co-building a training programme to facilitate patient, family and community partnership on research grants: A patient-oriented research project.

Ingrid NielssenSadia AhmedSandra ZelinskyBrian DompePaul FairieMaria Jose Santana
Published in: Health expectations : an international journal of public participation in health care and health policy (2023)
The objective of this project was to identify the aspects of the CIHR grant funding application that were elemental to having PRPs join grant funding applications and subsequently funded projects, in more active and meaningful roles, and then to co-build a training programme that could support PRPs to do so. We used the CIHR SPOR Patient Engagement Framework, and included time and trust, in our patient engagement approaches to building a mutually respectful and reciprocal co-learning space. Our Working Group included seven PRPs who contributed to the development of a training programme. We suggest that our patient engagement and partnership approaches, or elements of, could serve as a useful resource for co-building more PRP-centred learning programmes and tools going forward.
Keyphrases
  • case report
  • social media
  • quality improvement
  • platelet rich plasma