Iterative qualitative approach to establishing content validation of a patient-reported outcome measure for arm lymphedema: the LYMPH-Q Upper Extremity Module.

Manraj N KaurSylvie D CornacchiElena TsangarisLotte PoulsenLouise M BeelenLouise BordeleauToni ZhongMads Gustaf JorgensenJens Ahm SorensenBabak MehraraJoseph DayanAndrea L PusicAnne F Klassen

Published in: Journal of patient-reported outcomes (2024)

The LYMPH-Q UE is a modular PROM developed using international guidelines for PROM development and can be used in clinical practice, research, and quality improvement to enhance patient-centered shared decision-making. This study's innovative and iterative approach to content validation demonstrates that the LYMPH-Q UE is a comprehensive measure that includes important concepts relevant to patients with UE lymphedema.

Keyphrases

clinical practice
patient reported outcomes
quality improvement
image quality
systematic review
patient safety