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Health-related quality of life in patients with inborn errors of immunity: A systematic review and meta-analysis.

Ningkun XiaoXinlin HuangDandan YangWanli ZangSergey KiselevMikhail A BolkovKhyber ShinwariIrina TuzankinaValery Chereshnev
Published in: Preventive medicine (2024)
Despite limitations like small sample sizes and reliance on generic instruments, this research underscores the substantially lower HRQOL among IEI patients, emphasizing the need for a patient-centered, multidisciplinary approach to improve their life quality and calling for more focused attention on IEI patients and their caregivers' HRQOL.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • emergency department
  • patient safety
  • quality improvement
  • patient reported