Health-related quality of life in children and adolescents with Marfan syndrome or related disorders: a controlled cross-sectional study.
Thomas EdouardMarie-Christine PicotFernanda BajancaHelena HuguetAitor GuitarteMaud LangeoisBertrand ChesneauPhilippe Khau Van KienEric GarrigueYves DulacPascal AmedroPublished in: Orphanet journal of rare diseases (2024)
ClinicalTrials.gov, NCT03236571 . Registered 28 July 2017.
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