Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study.
Olalekan Lee AiyegbusiFatima IsaDerek KyteTanya PankhurstLarissa KerecukJames FergusonGraham LipkinMelanie CalvertPublished in: Health and quality of life outcomes (2020)
Patients with rare diseases often experience impaired HRQOL. The use of an ePROM system may enhance the routine management of patients with rare diseases.