Exploring the patient experience of locally advanced or metastatic pancreatic cancer to inform patient-reported outcomes assessment.

Joseph M HermanHelen KitchenArnold DegboeNatalie V J AldhouseAndrew TriggMary HodginAmol NarangColin D Johnson

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2019)

This is the first study to develop a conceptual model of patients' experience of metastatic/recurrent pancreatic cancer and explore the content validity of the EORTC QLQ-C30/PAN26 following therapeutic advances. The EORTC QLQ-C30/PAN26 appears conceptually relevant; additional items to assess neuropathic side effects are recommended. A recall period should be stated throughout to standardise responses.

Keyphrases

patient reported outcomes
squamous cell carcinoma
locally advanced
end stage renal disease
small cell lung cancer
chronic kidney disease
newly diagnosed
ejection fraction
prognostic factors
neoadjuvant chemotherapy
study protocol
clinical evaluation