The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study.

Sophie Bertaud David F A LloydGurleen SharlandReza Razavi Myra Bluebond-Langner

Published in: Health expectations : an international journal of public participation in health care and health policy (2020)

When recounting their experiences of antenatal counselling, mothers of surviving children with HLHS offer new perspectives that can guide fetal cardiologists in how best to support their individual patients. Further research is needed to comprehensively understand the experience of prospective parents counselled for severe forms of fetal congenital heart disease.

Keyphrases

congenital heart disease
end stage renal disease
pregnant women
young adults
ejection fraction
chronic kidney disease
newly diagnosed
heart failure
peritoneal dialysis
mental health
preterm birth
patient reported outcomes
early onset
human immunodeficiency virus
drug induced