Congenital Cardiac Surgery and Parental Perception of Risk: A Quantitative Analysis.
Robyn R LottoIan JonesSarah E SeatonRam DhannapuneniRafael GuerreroAttilio LottoPublished in: World journal for pediatric & congenital heart surgery (2020)
Parents perceived higher risk scores than those reported by the clinical team. Mothers reported statistically significantly higher scores than their partners, highlighting potential tensions. In addition, the changing perception of risk over time emphasizes the need for flexible levels of support and information as parents navigate uncertainty.