Use of a Best Practice Alert (BPA) to Increase Diversity Within a US-Based Autism Research Cohort.
Gabrielle F DuhonAndrea R SimonDanica L LimonKelli L AhmedGabriela MarzanoRobin P Goin-KochelPublished in: Journal of autism and developmental disorders (2022)
We evaluated the success of a best practice alert (BPA) in recruiting underrepresented families into an autism spectrum disorder research cohort by comparing BPA-response outcomes (Interested, Declined, Enrolled, Dismissed) in pediatric primary care practices (TCPs) serving diverse communities with those of subspecialty clinics. Compared to subspecialty clinics, TCPs had higher proportions of Interested responses for patients with private insurance (60.9% vs. 46.2%), Dismissed responses for patients with public insurance (30.1% vs. 20.0%), and Interested responses for non-white patients (47.7% vs. 33.3%). A targeted BPA can help researchers access more diverse groups and improve equitable representation. However, select groups more often had their alert dismissed, suggesting possible selection bias among some pediatricians regarding who should receive information about study opportunities.
Keyphrases
- primary care
- autism spectrum disorder
- healthcare
- end stage renal disease
- health insurance
- clinical decision support
- intellectual disability
- ejection fraction
- newly diagnosed
- chronic kidney disease
- affordable care act
- peritoneal dialysis
- mental health
- attention deficit hyperactivity disorder
- prognostic factors
- metabolic syndrome
- patient reported outcomes
- type diabetes
- cancer therapy
- health information
- insulin resistance
- patient reported
- working memory