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Community engagement group model in basic and biomedical research: lessons learned from the BEAT-HIV Delaney Collaboratory towards an HIV-1 cure.

Karine DubéBeth PetersonNora L JonesAmy OnoratoWilliam B CarterChristine DannawaySteven JohnsonRoy HayesMarcus HillRease MaddoxJames L RileyJane ShullDavid MetzgerLuis J Montaner
Published in: Research involvement and engagement (2023)
Our CEG model integrating a CBO, CAB and scientists could help move us towards the goal of effective, equitable and ethical engagement in HIV cure-directed research. In sharing our lessons learned, challenges and growing pains, we contribute to the science of community engagement into biomedical research efforts with an emphasis on HIV cure-directed research. Our documented experience with implementing the CEG supports greater discussion and independent implementation efforts for this model to engage communities into working teams in a way we find a meaningful, ethical, and sustainable model in support of basic, clinical/biomedical, social sciences and ethics research.
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