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Quality of Life in Epilepsy: Same questions, but different meaning to different people.

Tolulope T SajobiColin Bruce JosephsonRichard SawatzkyMeng WangOluwaseyi LawalScott B PattenLisa M LixSamuel Wiebe
Published in: Epilepsia (2021)
Our study revealed two different response patterns to quality-of-life instruments, suggesting heterogeneity in how patients interpret some of the questions. Researchers and users of PROMs in epilepsy need to consider the differential interpretation of items for various instruments to ensure valid understanding and comparisons of PROM scores.
Keyphrases
  • patient reported outcomes
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • single cell
  • newly diagnosed
  • peritoneal dialysis