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A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy.

Christine Mpundu-KaambwaGang ChenElisabeth HuynhRemo RussoJulie Ratcliffe
Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2018)
This review highlights the dearth in studies using preference-based PROMs to measure HRQOL associated with cerebral palsy in children and adolescents. The HUI-3 demonstrated the strongest psychometric properties, though it does not cover all dimensions relevant to this population.
Keyphrases
  • cerebral palsy
  • psychometric properties
  • patient reported outcomes
  • case control