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"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.

Mahsa ShabaniPascal Borry
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2016)
The identified shortcomings of current approaches to access review could be addressed via complementary mechanisms and alternative models of data sharing to facilitate access to data sets in a responsible fashion.Genet Med 18 9, 892-897.
Keyphrases
  • electronic health record
  • big data
  • healthcare
  • gene expression
  • data analysis
  • social media
  • health information
  • genome wide
  • copy number