Quality of Life and Social and Psychological Outcomes in Adulthood Following Allogeneic HSCT in Childhood for Inborn Errors of Immunity.
Bethany NicholsonRupert GoodmanJames DayAusten WorthBen CarpenterKit SandfordEmma C MorrisSiobhan O BurnsDeborah RidoutPenny TitmanMari CampbellPublished in: Journal of clinical immunology (2022)
Screening for holistic needs and common mental health difficulties should be part of routine follow-up. Information should be provided to patients and families in order to support decision-making regarding progression to transplant and the early identification of any difficulties.
Keyphrases
- mental health
- end stage renal disease
- decision making
- ejection fraction
- stem cell transplantation
- chronic kidney disease
- newly diagnosed
- healthcare
- prognostic factors
- bone marrow
- emergency department
- depressive symptoms
- type diabetes
- patient safety
- metabolic syndrome
- low dose
- skeletal muscle
- patient reported outcomes
- social media
- young adults
- insulin resistance
- sleep quality
- glycemic control