Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools.
Catriona Rachel MaylandKaty A SunderlandMatthew CooperPaul TaylorPhilip A PowellLucy E ZieglerVicki CoxConstance GilmanNicola TurnerKate FlemmingLorna Katherine FraserPublished in: Palliative medicine (2022)
Future research should include ways to adapt, refine and improve existing tools. Assessing their wider application in different clinical and cultural settings and conducting further psychometric assessment represent areas of focus.