"Like not having an arm": a qualitative study of the impact of visitor restrictions on cancer care during the COVID-19 pandemic.
Laura M HoldsworthRachel SidenBonnie O WongMae VeranoAnna Sophia LessiosHolly K TaborLidia SchapiraRebecca AslaksonPublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2024)
Our data demonstrate the tripartite structure of the therapeutic relationship in cancer care with caregivers providing critical support in the decision-making and care process to both patients and physicians. Caregiver absences led to practical, psychosocial, and informational burdens on both groups, and likely increased the risk of burnout among physicians. Our findings suggest that the quality of cancer care can be enhanced by engaging caregivers and promoting their physical presence during clinical encounters.
Keyphrases
- palliative care
- primary care
- end stage renal disease
- decision making
- mental health
- ejection fraction
- newly diagnosed
- healthcare
- chronic kidney disease
- quality improvement
- physical activity
- peritoneal dialysis
- electronic health record
- patient reported outcomes
- machine learning
- chronic pain
- deep learning
- patient reported