Developing and testing guidance to support researchers engaging patient partners in health-related research.
Jeanette FinderupLouise Engelbrecht BuurSarah Cecilie TscherningAnnesofie Lunde JensenAnne Wilhøft KristensenAnne Poder PetersenBente Skovsby ToftGitte Susanne RasmussenPernille Christiansen SkovlundTina Wang VedeløLotte Ørneborg RodkjaerPublished in: Research involvement and engagement (2022)
The researchers found the guidance to be supportive of their reflective thinking about engaging patient partners in their research. The testing provided knowledge about when and how to use the guidance but also raised questions about the usefulness of the guidance in communications with patients.