Strategic discussion on funding and access to therapies targeting rare diseases in Spain: an expert consensus paper.
Néboa ZozayaJ VillasecaF AbdallaA AncocheaI MálagaM Trapero-BertranN Martín-SobrinoO DelgadoP FerréA Hidalgo-VegaPublished in: Orphanet journal of rare diseases (2023)
The FINEERR project may provide a starting point for stakeholders involved in the process of funding and access to RD-targeted therapies in Spain to provide the necessary resources and implement measures to improve both the quality of life and life expectancy of patients with RDs.