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Gastrostomy and quality of life in children with intellectual disability: a qualitative study.

Emma J GlassonDavid ForbesMadhur RavikumaraLakshmi NagarajanAndrew WilsonPeter JacobyKingsley WongHelen LeonardJennepher Anne Downs
Published in: Archives of disease in childhood (2020)
Our comprehensive overview of the value of gastrostomy for children with intellectual disability and their families was classified within a QOL framework. Gastrostomy was mainly supportive over long time periods across many QOL domains. Findings will be of use to patient counselling and education and the development of family support resources.
Keyphrases
  • intellectual disability
  • autism spectrum disorder
  • young adults
  • healthcare
  • case report
  • quality improvement
  • smoking cessation
  • hepatitis c virus
  • hiv infected