Disclosure of clinically actionable genetic variants to thoracic aortic dissection biobank participants.
Adelyn BeilWhitney HornsbyWendy R UhlmannRajani AatrePatricia ArscottBrooke WolfordKim A EagleBo YangJennifer McNamaraCristen WillerJ Scott RobertsPublished in: BMC medical genomics (2021)
Participants were satisfied with the return of clinically significant biobank genetic results and CLIA laboratory testing; however, the process required significant time and resources. These findings illustrate the trade-offs involved for researchers considering returning research genetic results.