Victorian evolution of inherited retinal diseases natural history registry (VENTURE study): Rationale, methodology and initial participant characteristics.
Alexis Ceecee ZhangFleur O'HareThomas L EdwardsLauren N Aytonnull nullPublished in: Clinical & experimental ophthalmology (2022)
The VENTURE study will complement existing patient registries and help drive inherited retinal disease research in Australia, facilitating access to research opportunities for individuals with inherited retinal diseases.