The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy.
Joanna E BulkleyMaureen O'Keeffe-RosettiChristopher S WendelJames V DavisKim N DanforthTeresa N HarrisonMarilyn L KwanJulie MunnekeNeon BrooksMarcia GrantMichael C LeoMatthew BanegasSheila WeinmannCarmit K McMullenPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2019)
Despite the effort required to participate in research, this population of cancer survivors showed willingness to share detailed information about quality of life, health care decision-making, and expenses, soon after major cancer surgery. Additional contacts were effective at increasing participation. Response patterns differed by race/ethnicity and other demographic factors. Our data collection methods show that it is feasible to gather detailed patient-reported outcomes during this challenging period.