Disparities in Genetic Testing for Neurologic Disorders.

Aaron Baldwin Juliette Copeland Meron Azage Laynie Dratch Kelsey Johnson Rachel A Paul Defne A Amado Michael Baer Andres DeikLauren B ElmanMichael H Guo Ali G Hamedani David John IrwinAaron LaskerJennifer L Orthmann-Murphy Colin C Quinn Thomas Francis Tropea Stephen W Scherer Russell Taki Shinohara Roy H Hamilton Colin A Ellis

Published in: Neurology (2024)

We observed unequal utilization of our clinical neurogenetics program for patients from marginalized and minoritized demographic groups, especially Black patients. Among patients who do undergo evaluation, all groups benefit similarly from genetic testing when it is indicated. Understanding and removing barriers to accessing genetic testing will be essential to health care equity and optimal care for all patients with neurologic disorders.

Keyphrases

healthcare
end stage renal disease
newly diagnosed
ejection fraction
peritoneal dialysis
prognostic factors
palliative care
patient reported outcomes
pain management