Advance Care Planning Needs in Idiopathic Pulmonary Fibrosis: A Qualitative Study.
Meena KalluriSara OrensteinNathan ArchibaldCharlotte PoolerPublished in: The American journal of hospice & palliative care (2021)
Analysis of diverse experiences provided further understanding of advance care planning in Idiopathic Pulmonary Fibrosis. Advance care planning is desired by patients and caregivers early in their illness experience. Health care professionals described a need to clarify role, scope and responsibility. Practical guidance and training must be available to care providers to improve competency and confidence in these conversations.
Keyphrases
- advance care planning
- idiopathic pulmonary fibrosis
- healthcare
- interstitial lung disease
- end stage renal disease
- palliative care
- ejection fraction
- newly diagnosed
- chronic kidney disease
- mental health
- prognostic factors
- peritoneal dialysis
- quality improvement
- pain management
- patient reported outcomes
- virtual reality