Psychiatric genomics researchers' perspectives on best practices for returning results to individual participants.
Kristin KostickStacey PereiraCody BrannanLaura N TorgersonGabriel Lázaro-MuñozPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2019)
There are significant gaps between researchers' visions for "best" versus "actual" RoR practices. While researchers call for participant-centered practices, including consent practices that consider any special needs of participants with psychiatric disorders, return of individually meaningful results, and effective follow-up and provisions for treatment, the current reality is that consent and RoR practices lack standardized and evidence-based norms.