Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review.

Kristy Dm Wittmeier Kendall Hobbs-Murison Cindy Holland Elizabeth Crawford Hal John Loewen Melanie Morris Suyin A Lum Min Ahmed M Abou-Setta Richard Keijzer

Published in: Journal of medical Internet research (2018)

With caregiver and surgeon input, we identified 7 information priority areas related to HD. A review of the literature on the priorities found little evidence to support the development of high-quality guidelines. More research is necessary to meet the information needs related to HD as identified by stakeholders.

Keyphrases

social media
health information
case report
healthcare
clinical practice
robot assisted
minimally invasive