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Does Caregiver Participation in Advance Care Planning Using a Decision Support Tool Together With Patients Reduce Caregiver Strain, Burden and Anxiety Over Time? A Post-Hoc Analysis of a Randomized Controlled Trial.

Bronson R KunzlerAndrew J FoyBenjamin H LeviLauren Jodi Van ScoyErik B LehmanTheresa J SmithMichael J Green
Published in: The American journal of hospice & palliative care (2021)
Family caregivers who engaged in ACP together with patients using the decision support tool MYWK did not experience less strain, burden, or anxiety longitudinally compared to other study arms. These results may help inform the design of future studies and interventions that promote caregivers' involvement in ACP interventions.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • physical activity
  • chronic kidney disease
  • peritoneal dialysis
  • prognostic factors
  • palliative care
  • risk factors
  • patient reported outcomes
  • current status
  • patient reported