Information needs of adolescent and young adult cancer patients and their parent-carers.
Maria C McCarthyRobyn McNeilSarah DrewLisa OrmeSusan M SawyerPublished in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2017)
These findings indicate the importance of information needs for AYAs and their carers. The association between patient activation and information needs suggests that promoting young people's engagement with healthcare is a key opportunity within AYA care. Parent information needs and associated emotional distress additionally highlight the importance of family-centered care.