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[The COVID-19 Pandemic as an Opportunity and Challenge for Registries in Health Services Research: Lessons Learned from the Lean European Open Survey on SARS-CoV-2 Infected Patients (LEOSS)].

Lisa PilgramMaximilian SchonsCarolin E M JakobAnnika Y ClaßenBernd FrankeLene TscharntkeNick SchulzeSandra FuhrmannGabriel SauerSusana M Nunes de MirandaFabian PrasserMelanie StecherJörg J Vehreschild
Published in: Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) (2021)
As a collaborative effort of the whole network, LEOSS developed into a large collection of clinical data on COVID-19 in Germany. Even though in other international projects, much larger data sets could be analysed to investigate specific research questions through direct access to source systems, the uniformly maintained and technically verified documentation standard with many discipline-specific details resulted in a large valuable data set with unique characteristics. The lessons learned while establishing LEOSS during the current pandemic have already created important implications for the design of future registries and for pandemic preparedness and response.
Keyphrases
  • sars cov
  • electronic health record
  • coronavirus disease
  • respiratory syndrome coronavirus
  • big data
  • public health
  • quality improvement
  • minimally invasive
  • data analysis
  • current status