Composing adult lives with a ventilator at the intersection of developmental and neoliberal discourses of time.
Elizabeth J StrausHelen BrownA Fuchsia HowardGail TeachmanPublished in: Health (London, England : 1997) (2024)
This paper explores temporalities and experiences of time drawn from an analysis of interview data from a critical narrative inquiry of the experiences of young adults living with home mechanical ventilation (HMV). The analysis centers the ideological effects of dominant discourses that shape understandings of time in the Euro-Western world and the ways in which young adults' stories prompt a rethinking of time in health research and praxis. Data generation involved interviews and photo-elicitation with five young adults (ages 18-40). A critical narrative analysis of participants' stories surfaced the influence of ableist, developmentalist, and neoliberal discourses of time and the creative resistance that points to the potential of crip orientations to time in opening up possibilities for living. Implications for practice and research are offered.
Keyphrases
- young adults
- mechanical ventilation
- acute respiratory distress syndrome
- childhood cancer
- intensive care unit
- electronic health record
- healthcare
- mental health
- big data
- primary care
- respiratory failure
- extracorporeal membrane oxygenation
- south africa
- data analysis
- machine learning
- quality improvement
- climate change
- risk assessment
- artificial intelligence
- electron transfer