Socio-emotional repercussions of severe haemophilia A in the daily lives of children.
Iara Alves Feitoza de AndradeLucila Castanheira NascimentoWeslla Karla Albuquerque Silva de PaulaTania Maria Rocha GuimaraesEstela Maria Leite Meirelles MonteiroFrancisca Marcia Pereira LinharesMarinus De Moraes LimaMaria Wanderleya de Lavor Coriolano MarinusPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2022)
The experiences shared by children with severe haemophilia A and their daily needs should be the basis for guiding child-centred care. Encouraging self-care, including self-administration of the deficient factor, requires a partnership between health professionals, family members, school and child in the construction of therapeutic plans that consider the child's active participation.