Narrative analysis of adults with complex congenital heart disease: Childhood experiences and their lifelong reverberations.
Michelle KeirBarbara BaileyAngela LeeAdrienne H KovacsS Lucy RochePublished in: Congenital heart disease (2018)
Adults with CHD provide the voices of expert witnesses; illuminating how the pediatric journey influences their identity, choices, personal relationships and adult health care interactions. These narratives could inform and improve the contemporary care of children with heart disease.