Creating Consumer-Generated Health Data: Interviews and a Pilot Trial Exploring How and Why Patients Engage.
Kara BurnsCraig Antony McBrideBhaveshkumar PatelGerard FitzGeraldShane MathewsJudy DrennanPublished in: Journal of medical Internet research (2019)
CGHD can instigate an ecosystem of engagement and provide clinicians with an enhanced therapeutic relationship through an extended view into the patient's world. In addition to clinical diagnosis and efficient use of health care resources, data offer another tool to manage consumers service experience, especially the emotions associated with the health care journey. Collection and use of data increases consumers sense of reassurance, improves communication with providers, and promotes greater personal responsibility, indicating an empowering consumer process. Finally, it can also improve confidence and satisfaction in the service.