Who represents me? A patient-derived model of patient engagement via patient and family advisory councils (PFACs).

Vadim DukhaninScott FeeserScott A BerkowitzMatthew DeCamp

Published in: Health expectations : an international journal of public participation in health care and health policy (2019)

Eliciting views about patient representation from patients who have not been engaged as advisors or representatives has the potential to inform PFACs' activities. Attention should be given to improving and measuring patients' awareness of, and interactions with, their patient representatives.

Keyphrases

end stage renal disease
case report
ejection fraction
newly diagnosed
chronic kidney disease
prognostic factors
social media
patient reported outcomes
climate change
patient reported