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No one really plans to have multiple sclerosis: Transition readiness and quality of life in paediatric multiple sclerosis.

Estherline ThobyJulissa VerasSpandana NallapatiManuel E JimenezVikram Bhise
Published in: Child: care, health and development (2024)
Autonomy in health care management, adequate control of physical symptoms and sufficient family support impacted perceptions of quality of life. Implementing a dedicated transition visit, including the parent(s) of those with pediatric-onset multiple sclerosis, early in adolescence may provide an avenue for appropriate anticipatory guidance regarding available services, independent medical management and continuity of care.
Keyphrases
  • multiple sclerosis
  • healthcare
  • white matter
  • primary care
  • mental health
  • intensive care unit
  • physical activity
  • depressive symptoms
  • palliative care
  • affordable care act
  • health insurance