Brazilian registry of patients with porphyria: REBRAPPO study.
Paulo Victor Sgobbi de SouzaGliciane AfonsoWladimir Bocca Vieira de Rezende PintoPaulo de Lima SerranoBruno de Mattos Lombardi BadiaIgor Braga FariasAna Carolina Dos Santos JorgeRoberta Ismael Lacerda MachadoIcaro França Navarro PintoGlenda Barbosa BarrosHelvia Bertoldo de OliveiraSamia Rogatis CalilCibele FranzAcary Souza Bulle OliveiraPublished in: Orphanet journal of rare diseases (2023)
Brazilian patients with AHP had a higher prevalence of chronic disabling manifestations and a poor quality of life like other cohorts and a higher proportion of patients with recurrent attacks than previously reported.
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