Do patients have a say? A narrative review of the development of patient-reported outcome measures used in elective procedures for coronary revascularisation.
G M E E Geeske PeetersAnna L BarkerJason TalevskiIlana AckermanDarshini R AytonChristopher ReidSue M EvansJohannes U StoelwinderJohn J McNeilPublished in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2018)
Only nine of the 26 reviewed PROMs used in elective coronary revascularisation reported involving patients in their conceptual and/or item development, while patient input was unclear for eight PROMs. These findings suggest that the patient's perspective is often overlooked or poorly described in the development of PROMs.