"Left in limbo": Exploring how patients with colorectal cancer interpret and respond to a suspected Lynch syndrome diagnosis.
Nicole den ElzenSharelle L JoselandSibel SayaSowmya JonnagadlaJoanne IsbisterIngrid M WinshipDaniel D BuchananPublished in: Hereditary cancer in clinical practice (2021)
Our study findings highlight the variability in patients' interpretations of their diagnosis, cancer risk management and family communication when a diagnosis of SLS is received, and provide novel insights into how healthcare professionals can better support patients with SLS.