Shared decision-making with people with intellectual disabilities in the last phase of life: A scoping review.
Hanna W NoorlandtM A EchteldI Tuffrey-WijneD A M FestenC VrijmoethA van der HeideI J KorfagePublished in: Journal of intellectual disability research : JIDR (2020)
Although the importance of involving people with ID in the decision-making process is emphasised, best practices or guidelines about what this should look like are lacking. We recommend developing aids that specifically support SDM with people with ID in the last phase of life.