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Qualitative investigation of patient and carer experiences of everyday legal needs towards end of life.

Helen CloseKamal SidhuHazel GennJonathan LingColette Hawkins
Published in: BMC palliative care (2021)
Everyday legal needs are a common and distressing consequence of life-limiting illness, affecting patients and carers alike. This study identified inconsistent approaches but practical and psychological benefit when needs were met. Healthcare professionals were central to meeting social welfare legal needs and facilitating effective planning, with important roles as 'critical noticers', trusted intermediaries and compassionate communicators. Increased awareness, clearer pathways to support and closer service integration are needed to meet legal needs as a component of holistic care.
Keyphrases
  • healthcare
  • mental health
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • prognostic factors
  • peritoneal dialysis
  • palliative care
  • systematic review
  • case report
  • patient reported outcomes
  • sleep quality